Tuesday, 20 March 2012

My Purple Pledge - Young epilepsy

Young Epilepsy is urging people all over the country to back their flagship campaign ‘My Purple Pledge’ this March, and make a difference to the lives of the 112,000 young people in the UK living with epilepsy.

Pledges could range from wearing purple to work or school, baking and selling purple cakes, taking part in a Purple Zumba, or even being sponsored to lie in a bath of blackcurrant juice! Anything goes and the quirkier the better!   There are also Purple Zumba Parties up and down the country, check the website for your nearest.

Any pledge – big or small – will help raise vital funds for the charity which is the UK’s only national charity dedicated to children and young people with epilepsy and other associated neurological conditions. 

My Purple Pledge’ coincides with Purple Day (26 March 2012), the international day to mark epilepsy awareness and National Epilepsy Awareness Week (May 2012). So that is two whole months to get yourself purpled up.

Young Epilepsy Ambassador, European and World Champion 400 metre hurdler Dai Greene, said: “My Purple Pledge aims to put epilepsy on the map and make people aware of what it really means. I’m fully behind the campaign and will be pledging purple to help improve the lives of a lot of young people with epilepsy. I’m hoping that as many people as possible will be ‘in the purple’ for the 26 March and help raise desperately needed funds for such a deserving cause.

“Epilepsy effects over 112,000 children and young people under the age of 25 – including myself - and is the most common neurological condition in the UK.  Despite this, it’s still relatively unknown and has little awareness.”

Epilepsy is a serious debilitating disorder of the body’s nervous system causing symptoms such as paralysis, muscle weakness and seizures.  It affects around one child in every primary school and five in every secondary school.   Around 6,000 young people will experience communication, learning or behaviour problems. In some cases they will also have a significantly higher mortality rate.
Please visit www.mypurplepledge.com for more information and where you can donate and follow My Purple Pledge on Twitter at @purplepledge.

Facts and stats
  • Epilepsy is the most common serious childhood neurological condition. There are 60,000 children and young people under the age of 18, and 112,000 under the age of 25, living with epilepsy in the UK.
  • Around one in ten (6,000) experience severe communication, learning or behaviour problems due to their epilepsy.
  •  On average there is a child with epilepsy in every primary school and five in every secondary school.
  • There are around 600,000 people in the UK diagnosed with epilepsy. That’s about one in every 131 people. There are around 50 million people with epilepsy in the world. Around 75 people are diagnosed with epilepsy every day. 
About epilepsy:
·       Epilepsy is a neurological condition - which means it affects the brain.
·       Epilepsy is described as the tendency to have seizures. Epilepsy is only diagnosed after the person has had more than one seizure.
·       Seizures are sometimes called ‘fits’ or ‘attacks’. Seizures happen when there is a sudden interruption in the way the brain normally works.